Update

Drainage Still an Issue

This morning, Lori again noticed that it was hard to breath when in certain positions particularly when lying down.  Her abdomen was bloated as well.  It was clear that the fluid had already filled again in the space created from the last procedure.   We were able to speak to her interventional radiologist since he’s a friend of the family, and he let Lori know that he would squeeze her in for another round of draining tomorrow.  Awesome!

Clearly the rate at which she is building up fluid and needing to drain isn’t sustainable, and the doctors all recognized this.  In response, they plan to install a tube semi-permanently which we can drain at home as needed.  I’m sure it will be an annoyance to have a catheter constantly in the way, but it will be well worth it for the comfort this ability should provide.

We also scheduled appointments with Dr S on Monday to discuss the treatment plan moving forward.  I don’t know if he’ll want us to move on from the chemo she’s currently taking.  It will be nice to at least know what he thinks.

Pain-wise, she is 0-1 so that’s nice.  However, she’s extremely tired all day long.  The drugs have her subdued fairly hard, but she’s doing well all things considered.  Again, pain 0-1 is a big win.

8 Comments

  1. Thank you for the update Mark. Please call if you want help. Praying…??

  2. Sending love and prayers. Glad the pain is under control and it sounds like the catheter will help to avoid the emergency room. Hugs to Lori. ❤️❤️

  3. Thanks Mark! So thankful her pain levels are low… Hoping this catheter, even though a nuisance, will give her breathing relief. We love you guys. Praying EVERY step of the way

  4. Prayers continuing for all of you!

  5. Prayers and love. So thankful her pain levels are down. ❤️??

  6. Praying for you Joneses!!!

  7. Laurie & Chris V.

    January 29, 2016 at 12:47 AM

    Thank you for the update. Praying the pain stays low and the catheter does its job. Hugs and love!

  8. The exhaustion and tiredness is most likely the result of the chemo. I sometimes slept 18-20 hours in one day and then woke up tired, It is really hard to describe to someone who has not been through it. I continue to pray for the family.

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