Author: Lori Jones

Not Out of the Woods

Well, we’ve been home for a couple of days now, and some things are better while others are worse.  Overall, her pain is down during the day (2-3) but it’s up at night (5).  She’s taking every prescribed opioid at regular min time intervals, and still her legs and back hurt.  She also started her chemo and that has been going now for a couple of days.  That’s the good.

The bad thing is that the day we arrived home, her stomach began to expand by significant amounts.  In one day, we estimate that her waistline increased by 5-6 inches.  If you just met her and didn’t know any better, you would swear she’s currently pregnant and in her third trimester.  It really does look exactly like a pregnant belly.  Unfortunately, we’re pretty sure it’s her liver which has expanded well outside of her rib cage area and which is pushing her organs around and compressing her stomach (tiny appetite).  We know that as of the day she was discharged, her liver was already extremely diffuse.  We’re not certain why that expansion continued at home, and we’re not 100% sure it’s the liver doing the continued expanding, but that just makes sense.  So, we’re going to try to see her Dr here in Dayton to take a look it tomorrow.  If it’s the liver, hopefully it’s stable and then we can just let the chemo do its thing and ideally put things back to normal.  That’s pretty much the way it happened last May.  While not as extreme, her liver had grown and had become misshapen when this happened last May.  She recovered nicely last time, and I see no reason that can’t happen again.  On the plus side, we’ve been measuring her waistline every morning and evening to track the growth, and today we found that it has actually decreased by 1 inch over the past 24 hours.

Also, we’ve been planning an important trip for the past month or so, and with everything happening, it may not be possible for us to travel.  This trip is something that Lori has felt drawn to do, and it would be disappointing if we can’t make it happen.  This isn’t a vacation, but it involves a plane ride of a long distance, and in her current condition, that could be risky.  Also, being away from home for 5 days poses plenty of risk in and of itself.  This trip is important enough though that we will likely travel if she can maintain her current state of health through Tuesday.  This is one where we need wisdom to make the right call.

Thanks everyone for all of the support.  We aren’t communicating well on phones, but we appreciate the texts and notes of encouragement.

The Wilderness

I’ve gotten my first request to write about a topic!  After reading the “God Within Us” post, a friend from my past called to discuss a struggle of hers:

“I’m struggling with being very human. My mind doesn’t go with the things of God. It seems to go against God and I’m trying desperately to get Him to work within me and trying to make it all happen and I don’t know how to trust. It’s a point of frustration internally with where I am at with God.  But I can’t make Him work but I’ve got to WANT Him to work!” I’m willing to guess many others reading this post have been through the same thing, maybe more than once.

Matthew 14:28-29:

28“Lord, if it’s you,” Peter replied, “tell me to come to you on the water.” 29“Come,” he said. Then Peter got down out of the boat, walked on the water and came toward Jesus.

Continue reading

God Within! Peace and Strength Not My Own

I believe Jesus cares so much for us to try to protect us and guide us even when we don’t realize He is doing this!  I have seen this happen with people whom God is calling before those people have actually even made a decision to believe and trust in Him. It has happened to me!

Here’s what one of my favorite Bible characters, Paul, says about this subject in Ephesians 3: 14-20, “My response (Paul’s response to trouble or trials) is to get down on my knees before the Father, this magnificent Father who parcels out all heaven and earth. I ask him to strengthen you (he was talking about the Ephesians here) by his Spirit—not a brute strength but a glorious inner strength—that Christ will live in you as you open the door and invite him in. And I ask him that with both feet planted firmly on love, you’ll be able to take in with all followers of Jesus the extravagant dimensions of Christ’s love. Reach out and experience the breadth! Test its length! Plumb the depths! Rise to the heights! Live full lives, full in the fullness of God. God can do anything; you know—far more than you could ever imagine or guess or request in your wildest dreams! He does it not by pushing us around but by working within us, his Spirit deeply and gently within us.”
Continue reading

Pain Pump and Clinical Trial

This is Lori posting for the first time. To begin, I am so thankful for all the responses that come in through this caring page. I try to read all of them or Mark reads them to me. You all are the most amazing support group one could ever ask for or even imagine. THANK YOU.
I have been feeling more pain in my bones, particularly in my lower back, hips and down my legs to my knees. Continue reading

© 2018 This Ideal Life

Most pictures by Sara Field

Theme by Anders NorenUp ↑