Right now, Lori is between treatments as she is no longer taking the Olaparib drug but has not yet begun the Xeloda chemo. Two nights ago, she had quite a bit of pain in her back while lying in bed. During the day yesterday, she felt great and was able to move around and have a completely normal day. Unfortunately, last night she was kept awake again by very bad pain in her back and legs and shoulders. She rated it a 7 out of 10. We didn’t go to the ER, but we almost did.
She can’t begin the new chemo yet because her platelet count on Monday was 13,000. Normal is between 150,000 – 400,000. When Lori is on chemo, we generally see her around 60,000 – 90,000 which is low but not dangerously so. Apparently the Olaparib really zapped her platelets because 13,000 is ridiculously low. If she began to bleed at a platelet count of 13,000, she could very easily bleed out.
For perspective, when women are in labor, generally anesthesiologists won’t give an epidural to those with platelets lower than 100,000.
For cancer, we’ve found that nurses must get oncologist approval to administer chemo if platelets are 90,000 and below, but for Lori, her oncologists always approve it all the way down to 60,000. Anything lower, and she must wait.
So Lori is waiting, but it has been rough because she’s hurting more at night. The days seem to go just fine while she’s moving and active, but the nights are consistently bringing on the pain. She hates taking the oral pain meds (morphine and oxy) to supplement the pain pump because those drugs make her loopy and disfunctional. She has always been that way. In fact, she didn’t like the epidural with our first child for that reason. With our third child, she had low platelets (gestational thrombocytopenia). She didn’t use any anesthesia at all, and it was by far her favorite delivery of the three kids. She’s some kind of crazy, y’all.
For those who pray and love Lori too, please pray for comfort. Also pray for her platelet count as we take her hopefully today to get an update on the count. Finally, always pray for full healing. Lori has been having some really good encounters with the Lord through prayer recently, and I believe He is faithful through this time too. We’re actually kind of excited about what’s to come.
I was just about to post this when Lori reported that she’s feeling much better. It’s weird how she’s so strong during the days but struggles at night. For now, we’ll be grateful for strong days. Also, we’ve been through this exact thing numerous times now (the timeline page is a great reminder…updated with new pictures btw). I’m confident she’ll bounce back again.