Yesterday, we got a call that MVH was able to fit Lori in to have her abdomen and chest drained. We arrived to the hospital at 12:30 and by 2:30 they were ready to begin. The doctor who performed the procedure was the husband of a great friend of our family, and he was fantastic. He completed a thoracentesis (chest drain) and a paracentesis (abdomen drain). They worked for around 45 minutes to complete both procedures, and they extracted approx 3.5 liters in total. 2300 cc’s from her abdomen and 1200 cc’s from her right lung.
She immediately felt some relief but she was sore and uncomfortable as her lungs were working to fill in the space that had been vacated by the fluid. It causes coughing and scratching around the lungs so she couldn’t really enjoy the relief immediately. Today however, she has very little pain overall and her breathing is normal. In fact, she said she has no pain tonight. However, she looks pretty rough if I’m being honest. Her face looks wearied, and she is very tired throughout the day. She’s too exhausted to move around much, and the drugs keep her loopy and sedated most of the time. It’s frustrating that she can’t function despite having no pain, but for now I’m perfectly happy with the pain free part. We have plenty of help from family in town so we’re getting along very well. We’re also looking for signs that the chemo is working. Xecloda’s efficacy is still ambiguous, but we’ll stick with it until it’s certain that it’s not working. The most important thing is that her liver recovers so the rest of her body can catch up. We’re hoping Lori can continue to operate pain free so that we can ween off of the opioids.
We’re also so thankful to everyone for all of the day-to-day support. Home school moms are really stepping up to help teach Claire! Our parents are always helping at the house. The meal train is also up and running again, and that makes the evenings much easier. We appreciate your prayers! Keep em coming.