This morning, Lori again noticed that it was hard to breath when in certain positions particularly when lying down. Her abdomen was bloated as well. It was clear that the fluid had already filled again in the space created from the last procedure. We were able to speak to her interventional radiologist since he’s a friend of the family, and he let Lori know that he would squeeze her in for another round of draining tomorrow. Awesome!
Clearly the rate at which she is building up fluid and needing to drain isn’t sustainable, and the doctors all recognized this. In response, they plan to install a tube semi-permanently which we can drain at home as needed. I’m sure it will be an annoyance to have a catheter constantly in the way, but it will be well worth it for the comfort this ability should provide.
We also scheduled appointments with Dr S on Monday to discuss the treatment plan moving forward. I don’t know if he’ll want us to move on from the chemo she’s currently taking. It will be nice to at least know what he thinks.
Pain-wise, she is 0-1 so that’s nice. However, she’s extremely tired all day long. The drugs have her subdued fairly hard, but she’s doing well all things considered. Again, pain 0-1 is a big win.